Participant Group: Young and adult carers

Meet Mary: Create Live! connects young carers

create live young carers artwork
create live young carers artwork

CREATE LIVE! CONNECTING YOUNG CARERS

Create Live! is Create’s online, interactive project initiative developed to reach participants during the lockdown, offering a creative lifeline to the most vulnerable adults and children in isolation.

create live young carers artwork

Over three days in April 2020, Create’s professional photographer Alejandra Carles-Tolra delivered photography workshops with young carers from Kingston. Mary* (13) has been caring for as long as she can remember for her younger brother Harry* (11), who has Down Syndrome and diabetes.

These are her reflections on the workshops:

“Over the last three days, we’ve been looking at different techniques for taking pictures, experimenting with different objects, and expressing our creative sides by taking photos. Doing a creative workshop over video call was actually really good because of the break-out rooms where we could work in smaller groups. It was a lot easier to use the technology than I expected it to be. The only difficult thing is WIFI for some people isn’t always so good. It was a really good workshop for being stuck inside!

“I learnt that when I put my mind to something, I can create good work and really improve my skills.”

Young carer Mary

“I’ve learned a lot about using light in photographs from the workshops. Alejandra was a really good teacher and I learnt a lot from her. She was good at getting everyone really involved in the workshop and taking turns. I would like to continue to work on being more unique in my photography and adding a bit of a spin to each picture. I learnt that when I put my mind to something, I can create good work and really improve my skills.

create live young carers artwork

“Lockdown has impacted my caring role a lot. When my parents have work calls I have to look after my brother. In the morning I get up and help out with managing Harry’s diabetes. I’ve been caring for him my whole life, or since I was two as that’s when he was born. I don’t find it too hard because I’ve never known anything different. I find looking after him quite easy now. Since the lockdown, the biggest changes are being around family a lot more. It’s really nice but sometimes it can get quite stressful with the whole family in the house and Harry.”

“It was really good to work with other people. It was good to see what other people can produce and see their take on things. It was a really great experience to meet people who are also young carers and know how I feel. It was really good to meet everyone and find out their ideas about this project.”

create live young carers artwork

Name of young carer and her brother changed to protect anonymity

Meet Owen on Young Carers Awareness Day 2020

MEET OWEN ON YOUNG CARERS AWARENESS DAY 2020

Young carers are a vulnerable group of children who often experience bullying, isolation and mental ill-health. Most of the 700,000 young carers in Britain take on up to 20 hours of caring responsibilities a week. Some care for more than 50.

Create’s creative arts programmes with young carers encourage them to express themselves and develop confidence, self-esteem and supportive relationships with other young carers.

Meet Owen

Owen, 16, cares for his mother, who suffers from depression and chronic pain, as well as his older brother, who is blind. He told us about his experiences taking part in Create filmmaking and music workshops in Bath.

“My mum developed a back problem when I was about 12 years old. It progressed until a doctor told her she couldn’t work anymore and she now suffers from depression and constant pain. But like everything, my home life has its ups and downs. You have to make the best of what you’ve got.

“I like to be creative but I don’t often get creative opportunities like this. I can draw at home but I wouldn’t have the equipment to go out and make a film. And although I had tried filmmaking before, I didn’t have the opportunity to look at different camera shots or experiment with new techniques like I have done here.

“Knowing you’ve created something gives you a nice feeling. I felt a lot of pride when making the soundtrack.”

Owen

“Since we had SouthGate Centre to use as a location, we decided to make a film about a group of friends going out to town. With every team there are moments. Young carers all have something which can cause tension or drama with other people. But I really enjoyed working with such a motivated group of people.

“It was really nice to explore making music because I’ve never had the chance to try it out before. Being in this environment with musicians who are friendly and have a laugh with you really encouraged me to try new things and expand my skills and knowledge. Knowing that you’ve created something gives you a nice feeling. I felt a lot of pride when making the soundtrack; pride and a feeling of accomplishment in saying, ‘Yeah, I did that.’”

Read about Create’s Children & Young People Now ‘Young Carers’ Award.

Create wins Children and Young People Now Young Carers award

Nicky Goulder collects the Young Carers award in 2020
Nicky Goulder collects the Young Carers award in 2020

CREATE WINS CHILDREN & YOUNG PEOPLE NOW ‘YOUNG CARERS’ AWARD

Last night, a colleague and I attended the Children & Young People Now awards ceremony, an evening that celebrates those working with children, young people and families across the UK. The awards are now recognised as the “Gold Standard” for this work and I’m thrilled that Create won the Young Carers award.

children and young people now award 2019

Selected from a shortlist of six incredible organisations, our extensive inspired:arts programme (incorporating art:space and connect:create) was chosen as “the initiative that has done the most to support children, young people or young adults up to 25 who care for a family member or friend with an illness, disability, mental health problem or addiction. This includes support to meet carers’ educational, health, social and emotional needs; helping carers who have previously been unidentified by services; and working with families to reduce inappropriate levels of caring.”

To have been recognised for our work with young carers (one of seven strands of our work across the UK that uses the creative arts to empower the lives of disadvantaged and vulnerable children and adults), amongst so many other outstanding organisations and individuals, is a real privilege. Knowing that we were selected not only by a panel of 15 adult judges but also by a panel of 10 young judges – placing young people at the centre of the process – was particularly meaningful.

The event was so much fun – the vibrant tone was set from the start with an incredible performance by The Sick Year Sixes band from Hawthorns Primary School in Wokingham, which received a rapturous standing ovation. They were followed by the effervescent presentational style of Dave Benson Phillips, self-professed statesman of kids’ TV.

Nicky Goulder at the Children and Young People Now Awards in 2020

Young carers continually put other people’s needs first, taking on extra responsibilities that can lead to anxiety, isolation, missed opportunities and a lack of confidence. 72% report feeling isolated during the summer holidays and 68% feel more stressed or worried during their time off school. We have been committed to young carers since we launched our first project with them in 2007. Last year, we designed and delivered creative projects in 18 geographical locations that empowered 548 young carers, helping them to reduce isolation, build skills and creativity, and enhance wellbeing. As one young person told us:

“It made me feel like I was the one being cared for.”

I am so proud of everyone involved with Create who has enabled us to deliver this work. To our young carers, young carer services, artists, funders, Create staff team and Trustees – this is YOUR award.

To read about our work with young carers, click here.

Nicky Goulder, Founding Chief Executive

Nicky Goulder collects the Young Carers award in 2020

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Minister for Care Caroline Dinenage announces new funding for carers

caroline dinenage at a Create event
caroline dinenage at a Create event

MINISTER FOR CARE ANNOUNCES NEW FUNDING FOR CARERS

12 June 2019 – We were delighted to be part of an event with the Minister for Care at the Carers Centre in Tower Hamlets this morning celebrating both Carers Week and the Carers Centre’s 21st birthday. Cake and a joyful performance of new music by a group of adult carers and our musicians helped with the party feel!

Speaking at the event, Minister for Care Caroline Dinenage MP announced the Carers Innovation Fund, a £5 million fund that will invest in innovative new projects to improve the wellbeing of carers across the country. She commented: “Informal care is a fundamental part of our health and care system, which would not be sustainable without the incredible contribution of carers across the country. But we cannot take them for granted and must do more to protect their wellbeing and ensure they can enjoy full lives.”

Our Chief Executive, Nicky Goulder, commented: “I am delighted that the government and the Minister for care has taken this step to invest in innovative ways of supporting carers. At Create, we’ve seen the incredible impact of our creative arts programmes with adult carers including those who attend the Carers Centre Tower Hamlets. Our carefully tailored projects enable carers to build creative and arts skills, confidence and self-esteem, and reduce their isolation by socialising with people who understand the challenges they face. They also focus on wellbeing, giving carers essential ‘me-time’ and a chance to have fun.”

caroline dinenage at a Create event

We have been delivering our creative:release project with adult carers at the Carers Centre in Tower Hamlets since 2017. This is funded by Reed Smith LLP, which also provides dedicated volunteers to collaborate with the participants during the workshops. Working with an average of 12 carers per project, our professional artists have explored artforms including music, photography, dance and ceramics with the carers. Each year’s project culminates in a showcase and lunch hosted by Reed Smith, where the carers celebrate their achievements and reconnect with the Reed Smith staff who have volunteered during the workshops.

Create artist Graham Rix
Create artist Graham Rix

Sandra’s story

Sandra, a carer who has taken part in several of these projects told us:

“I used to be a carer for my late husband, even though I didn’t know I was a carer at that time, and now I’m looking after my 87 year old father-in-law. He’s got vascular dementia, Alzheimer’s, and he’s also got prostate cancer which he’s had for 11 years. It’s hard work at times and can be very emotional. It can be lovely and rewarding but it can also be heart-breaking.

“When you’re a carer the time you get to yourself is a bit more restricted. Coming to the Carers Centre has helped me a tremendous amount though, spending time with other carers and making wonderful friends. If it weren’t for here then my life would be completely different – I would be very restricted and very isolated.

“When you’re a carer you aren’t able to afford a lot of things so projects like this can be the only way we get to do things like photography. That’s why we need things like Create to come in and give us these opportunities.

“Being creative at this project has made me feel a lot better because I’m actually doing something for me for a change. I’m very privileged to have had this opportunity. It’s made me feel like I’ve done something worthwhile. Getting better at photography has made me feel like I can actually do something and that I’m not as thick as I thought I was – it’s given me a lot of confidence.

“You don’t really take notice of what you’re seeing until you’re looking through the lens of a camera: the different shades, the lighting and everything like that; the light coming in through windows. I absolutely loved the black and white – it looks so natural and really reminded me of old fashioned pictures that they used to take in the olden days.

“I’ve always taken pictures, but only on my mobile. I didn’t want to give the camera back at the end of the project! I want a camera now – I’ll have to get my son and daughter to club together to buy me one.”

Young carers take part in Lord Mayor’s Show 2018

young carers lord mayors show 2018
young carers lord mayors show 2018

YOUNG CARERS FROM ACROSS LONDON TAKE PART IN THE LORD MAYOR’S SHOW WITH CREATE

This Saturday, 10 November 2018, we gave around 30 young carers from across London the opportunity to take part in an 803-year-old City of London tradition: the annual Lord Mayor’s Show.

young carers take part in lord mayors show 2018

Before the show, the young carers worked with our professional lead artist Jack Cornell to create mobile sculptures and banners inspired by the Rt Hon the Lord Mayor Peter Estlin’s theme for his year in office, ‘Shaping Tomorrow’s City Today’. Their fantastical creations, which imagined eco-friendly buildings and celebrated sustainability, technology and creativity, formed a walking float.

The young carers, with staff from Create and the participating carers’ services – Family Action Camden and Islington Young Carers Service, Kingston Carers’ Network, Carers’ Hub Lambeth and Sutton Carers Centre – paraded the float along the procession route from Bank to Aldwych.

The day began with face-painting by our volunteer Sarah before the young carers set off to take their place in the procession. Cheering crowds met us as we made our way through the City. A highlight was passing Mansion House, where the Lord Mayor greeted us from his balcony. After rounding St Paul’s Cathedral and heading down Fleet Street, we stopped for lunch. The return leg of the route began with a scenic stretch along the Embankment. High-fiving and waving to the crowd, the young carers finished the procession in high spirits and – luckily – just before the weather turned from glorious autumnal sunshine to torrential rain.

lord mayors show 2018

One young carer who took part in the Show said, “I liked meeting different young carers from across London. My favourite moment was seeing the Lord Mayor and seeing my parents cheer for me. Being in the Show made me feel proud of myself, happy and appreciated.” Another said her favourite part of the day was “Everything!”

Read our interview with Peter Estlin

National Poetry Day 2018

national poetry day
national poetry day

NATIONAL POETRY DAY 2018

4 October 2018 is National Poetry Day, an annual celebration that encourages everyone in the UK to enjoy, discover and share poems.

At Create, we want to ensure that everyone, no matter their circumstances or background, has the freedom to express themselves creatively and we’ve found that poetry is a fantastic medium for this.

Our professional writer Cheryl Moskowitz, who has led a wide variety of Create projects over the 15 years she’s been working with us, spoke to us for National Poetry Day. Cheryl says that poetry can and should be accessible to everyone.

“If you are someone who struggles at a basic level with reading or writing you might be resistant to the idea that poetry could be relevant or even possible for you to engage with. Time and time again I’ve seen this proved wrong, however. We are all born with an inherent love of the shape, sound, rhythm and cadence of words and a curiosity about their meaning, especially when that meaning has a specific affect and relevance to ourselves. That’s all poetry really is.

“Somehow the more restricted a person’s life and circumstances, the more it seems there is to gain from the freedoms afforded through writing poetry.”

cheryl moskowitz

“Some of my favourite moments have been with those who are, at first, most doubtful about their abilities or seemingly disinterested in poetry. Male young offenders in prison settings for example, or women caught in cycles of drug misuse and sex work, or people who are homeless. Somehow the more restricted a person’s life and circumstances, the more it seems there is to gain from the freedoms afforded through writing poetry. Playing with words produces all kinds of new possibilities, opens doors and changes thinking. That’s what creativity is all about.

“We all use language as a form of communication but we can often feel stuck and unable to say the things that we really want to say in everyday conversation. Poetry lifts language to another level, constantly seeks to find beauty and new meaning in the words we use, and helps us to communicate on an emotional and instinctual level.”

Two poems by participants

This National Poetry Day we’d like to share two poems written by participants during our projects. Both poems demonstrate how poetry empowers us with the freedom to express our feelings. Poetry has allowed both writers to explore self-expression whilst experiencing the confidence-boosting experience of creating art.

I am a dashing, racing, rushing, bolting,
zooming, hurtling, exhibiting,

hovering, swooping, darting,
speeding, manoeuvring
Eagle.

I enjoy being high in the sky
and I believe that I will sky dive

I feel like the ability to actually fly is possible
if you are really in the sky

It is one of the best feelings in the world
to feel like flying in the air

I know that once you are up there
you can spread your wings
above those who have doubted you.

I know the doubters will never bring me down.

By Asante, a young carer in Southwark

Spring in winter, fresh flowers and water fountains
Time to make molehills out of mountains
I’ll make you a sandwich and put fresh parsley
On it, I’ll put it on it … don’t mind me.

Any way you twist it, the winter’s going to be spring
Soon I’ll start to sing it, ‘cause it’s a fine grand thing
Whenever a bee stings me in the mouth
Suddenly I remember it’ll soon be spring
Maybe it’s why birds fly south
Maybe it’s the birdsong they bring.

Don’t worry when the cold wind blows
Your love always ushers the spring.

Thank you for the sarnie.

By Marc, a member of Deptford Reach, which works with people whose lives have been affected by homelessness and mental ill-health

Meet Chris

inspired arts meet chris
inspired arts meet chris

MEET CHRIS

inspired:arts is Create’s multi-art programme for young carers. In August inspired:arts went to Newham where actor James Baldwin worked with young people from Family Action Newham and Tower Hamlets. The group wrote and performed monologues, experimenting with narrative structure and characterisation. inspired:arts enabled the young carers to take a break from their caring responsibilities, build trusting relationships with their peers and develop social skills and confidence.  

Chris cares for his mother who has terminal cancer. He talked about being a carer and taking part in inspired:arts:

“My mum’s cancer is terminal and she is often at the point where she can get upset. All I can do is help her out as much as I can. Sometimes she has to go to hospital in an emergency, sometimes she isn’t feeling well. I have a lot of responsibilities but I don’t mind. I want her to know that her son is doing good in life and to make her proud.

“Projects like this are important because I need some time off. This is a really good opportunity for me to make new friends and take some time for myself. It made me feel more relaxed and know I’m in a place with other young carers where I can enjoy myself.

“IT MADE ME FEEL MORE RELAXED AND KNOW I’M IN A PLACE WITH OTHER YOUNG CARERS WHERE I CAN ENJOY MYSELF.”

Young carer Chris

“For the drama project we were writing and performing monologues, which had to show two emotions, so I did happy and angry. Learning that every story has a problem and a resolution, a bad part and a good, and we had to put that into the monologue.

“I felt nervous before the performance because I was doing it in front of an audience but I felt like I could do it. I knew I had to get over the nerves and do my best. It was enjoyable once I was on stage in front of the audience. I feel like I’m showing what I can do and what I’m good at.

“It was great working with James [Create’s artist]; he’s a really good guy. Working with him is very different from being in school. He always keeps us going if we need any help and he’s full of ideas. When I’m in school there’s only one teacher for a big class, but here James has time for everyone and you learn from the other young people too.

“Doing this project I learned that I can work with new people who I don’t know. If you meet new people you have more friends, and the more you have you feel like you’re in a world where people can help you.”

* Name of young carer changed to protect anonymity

Meet Cameron

Cameron inspired arts
Cameron inspired arts

MEET CAMERON

inspired:arts is Create’s multi-art programme for young carers. This December (2017) inspired:arts has been in Merton where our jewellery designer Hayley Kruger has been working with young people from Carers Support Merton.

The group have experimented with various materials and design techniques to produce a range of jewellery, as well as seasonal Christmas decorations. Working in small groups enables the young carers to build upon teamwork and communication skills alongside developing their creativity. inspired:arts has given them a break from their caring responsibilities, encouraging them to build trusting relationships with their peers and develop social skills and confidence.

Cameron inspired arts

Cameron’s older brother has severe Global Development Delay, microcephaly and epilepsy. Now seven, Cameron has been caring for him since he was four years old. Cameron talked to us about taking part in inspired:arts.

“We’ve been making jewellery – making different designs by twisting and twirling the materials around, then tying them up. Today we’ve been doing designs with ribbon. We’re going to hang them from Christmas trees, so the trees can be decorated. We’ve not just been making Christmas decorations all the time though – we’ve been doing lots of different jewellery designs.

“Things like this are good for young carers like me because people have lots of fun and make creative, colourful stuff.”

Cameron

“I felt very happy working with Hayley because she was so kind. It was lots of fun working with the rest of the group too, and now I’ve made some new friends. By taking part I’ve learnt that working in a group is not all about me – it’s about listening to others and having respect.

“Things like this are good for young carers like me because people have lots of fun and make creative, colourful stuff. Now that it’s the last session, I feel sad that you’ll never ever come back!”

(Don’t worry Cameron – Create will be running inspired:arts with Carers Support Merton again in February).

* Name changed to protect anonymity

Read about inspired:arts

Cameron inspired arts

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Brunel University fundraise for Create

brunel university student fundraiser
brunel university student fundraiser

BRUNEL UNIVERSITY STUDENTS FUNDRAISE FOR CREATE

In March 2018, music students from Brunel University organised a series of three events in aid of Create, showcasing a variety of music, film, visual art, and spoken word. They raised over £400, which will go towards supporting emerging artists as part of our Nurturing Talent programme. Here, two of the organisers, Louie and Millie, share why they decided to fundraise for us and how they found the experience.

“We first came across Create during the process of organising our Tones events, as part of an assignment for our music course at university. As music students, we were looking for charities that work with the aim of bringing the arts to marginalised people in our local community, so when we came across Create, we admired their work and knew immediately that we wanted to support them. We put on three free events in public spaces all around Uxbridge, showcasing many forms of the arts such as music, dance, poetry, visual arts and film, and organising the events was a lot of fun!

“The best thing about the whole process was meeting so many talented people: getting to work with the great people from the local businesses and organisations who supported us (such as Hillingdon Library and Harris + Hoole, Uxbridge), members of the public and the wonderful team at Create! The Create team were lovely to work with, we kept in touch with Emma [Create’s Senior Development Manager] throughout the organisation process. Emma was helpful from the start and took a real interest in us and our events – she even invited us to attend one of Create’s local workshops for young carers.

“Spending time with the young carers was such a fun and eye-opening experience for us.”

“Spending time with the young carers was such a fun and eye-opening experience for us. It helped us to understand Create’s work and what kind of projects our fundraising would be going towards. The Tones events started as just another university assignment we had to do, but after attending the workshop we realised the reality of what we could do with this – that we could raise money for a charity that impacts many lives. We managed to raise over £400 for Create, which we are incredibly proud of and would have never imagined achieving at the start!

“As soon as we started to work with Create we began to think outside of the ‘university bubble’ and it gave us the opportunity to work more closely with the local community. Overall, it was so fitting to raise money for Create through our own arts events and it was such an enjoyable experience throughout. We would highly recommend other London university students to do similar projects with Create in mind!”

If you would like to organise an event in support of Create then email us here for more information.

This article is from 2018.

Meet Paul

art space kingston 2018
art space kingston 2018

MEET PAUL

art:space, our partnership with British Land, is our multi-artform project for young carers. During February 2018, our professional artist Jen worked with a group of young carers using the medium of printmaking to develop confidence, creative and social skills, and build relationships with other young carers while having a vital – and fun – break from their caring responsibilities.

“Being creative helps me relax. Projects like these help me realise I can do more than I thought I could.”

Paul, young carer

Paul, who cares for his dad who suffers from depression, attends Kingston Young Carers Project and took part in the workshops. He talks about his experience:

“I care for my dad. He has, I don’t know if you would call it an illness, but something called depression where he gets stressed and upset very easily and it can be hard sometimes. I’ve been caring for my dad since I can remember. I think young carers tend to spend a lot more time with their family. People that don’t have someone to care for someone tend to be more sociable and have more friends.

art space kingston 2018

“We have been printing on T-shirts and bags for the last few days which has been fun. Making something gives you a feeling of pride. It was great working with a professional artist that has so much experience, she was able to show us new techniques and bring the most out of us. It was good working with the group as everyone had different styles and different ideas about what they wanted to make. Doing something creative was great especially as there were loads more resources here that we would never have access to at home.

“Being creative helps me relax. Projects like these definitely help as they distract us and let us have good times. They help me realise I can do more than I thought I could.”

In the UK there are an estimated 700,000 young carers who have varying degrees of caring responsibilities, some spending more than 50 hours each week caring for a loved one. Young carers often have no creative outlet and lack the chance to play with their peers.

Our projects offer a chance for young carers to develop confidence and friendships with other young carers who understand the issues they face. All our workshops are run by professional artists, ensuring that our participants work with the most inspiring, skilled, creative people.

art space British Land

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